Hospitalized for 5 weeks

Hi Kids!

I have not been able to post any articles for over several weeks. I went to the ER with excruciating pain in my legs and was diagnosed with Guillian-Barre' Syndrome. This very painful disease only affects 2 in about 100,000 people....I should be so lucky in the lottery!

I needed to be air-transported to a larger hospital which could diagose and treat this syndrome. After that, I was intubated for 9 dalys and prettly much unconscious due to the morphine and other pain killers along with versed....unfortunately, I was conscious several times duriing that time span and do recall the tremendous pain and not being able to talk or swallow....what horrible memories!

I had tubes in every orifice, including a rectal tube which was regularly "cleaned out", although I do not remember much of this.

After the ET tube was finally removed, I still could not talk or swallow properly....it took several days to be able to do these activities. I was still fed by an NG tube which remained in place for over 3 weeks. Every so ofen, I would simply defacate in the bed and get cleaned up....a total loss of dignitly and privacy.

Well, after five weeks, I was transferred to a "Rehab" facility. Not nearly the great care of the ICU and you learn to beg for pain pills. This was my intro to severe constipation due to the huge amount of pain pills and medicines, including oxycodone and the fentynl patch. I was given regular evening "mini enemas" and then had to negotiate my wheelchair to the bathroom and release before crapping all over myself and the surrounding area....quite a challenge. On one occasion, the night nurse just "crammed the unlubed enema" into my already sore rectum....how is that for fulfilling hospital fantasies!

I am home now and still need to use enemas due to the effects of the pain medication.

All in all, my hospital experience was certainly not a fantasy fulfillment...I did not come across any nurses or nurse assistants who were gentle with their enema insertions. Oh Well! I am finally home doing my own thing and hopefully will recover from this monster disease in a few months.

It is nice to be able to visit online with this group!

Joymkr

I am so sorry to hear about this situation. I am new to the group. Everyone has been so great and kind . I hope you get better quickly. Take care, Rest and Bless you! It was a bad experience for you.

Hi Joymkr,

My thoughts are with you in recovering from GBS. Sounds like your episode was typical with a fast onset and long recovery period. The docs in your community hospital did the right thing in sending you to the big city as soon as they did. Your experiences in the extended care facility were disappointing to say the least. But the worst is long behind you and it's time to start thinking of the warmer months ahead and a return to our favorite pasttimes! Good luck.

Kind regards and thanks to klystersforme and alwaysneed1 for your considerate and compassionate responses to my post. I have found that members of this group are some of the most kind people on the planet. Receiving supportive messages when one is down and in need ot encouragement is wonderful; I look forward to returning this kindness to others in need of support.

Joymkr

I wish you well, healed with an end to your suffering. I just don't understand the why of what some people have to go through in this life. It's said that what doesn't kill us makes us stronger. I wish that for you very much. Best 73!

What a terrible thing to happen, I am sorry. I will say this for sure, if you had been my patient I would have been more gentle with your enema. Not saying this in a kinky form, I'm just saying I would have been easier on you. You also would not have had to beg me for your pain pills. I am a huge believer in my patients receiving pain meds, sleepers and nerve/antipsychotics. They are all a blessed relief in rehab I think.

Get better soon!

Mashie