Currently cathed?

It's now a little past 4 in the morning , I was woke up a little while ago with a strange pain in my rear end . It seems that in my sleep I had twisted the hose and it was slowly being pulled “out” Just one more thing I have to learn I guess .

It wasn't a good way to get a prostate massage I will tell you that .

My Dad used a leg bag when he was cathed. It worked out best for him.

I get my catheter changed tomorrow.

I will ask the nurse about leaking around the catheter.I have had some leakage around my catheter, I get botox injections next week I will ask the Dr. some questions as he is injecting the botox.

@Czorro, maybe the catheter is too small. Ask for a bigger one.

@Czorro, maybe the catheter is too small. Ask for a bigger one.

I am wearing a FR-30 and the balloon is inflated with about 38 cc of water. Last time the nurse said some water migrated into the bladder, 1 cc or so. I will find out later this afternoon. I had much more leakage with a FR-16 than with a FR-30.

I am still fairly new at living with a catheter but due to my own mistakes and mistakes of others I have found that for me , that no two bodies are the same The first catheter that was put in , I was embarrassing measured all the way into my bladder and they said that I was a 22fr but for comfort a 20fr and 10 cc balloon should be used . It leaked very little , just a couple of spots on my underwear , enough to question about but not enough to wet my pants . My second was by a nurse that insisted ,over my objections that a 14fr with a 10 cc balloon was what everyone uses and that is what i would get no matter what . That one twisted inside me , plugged up and put me in the hospital where they put in a 20fr and filled the balloon to 10cc . With that one I haven't leaked at all . I have road my quad less then 5 miles and leaked so bad it looked like , well it looked bad . changed how I wore my leg bag and rode 110 miles no problem . From talking to others here and a few other places about how to live with and look normal with a catheter I kind of think we have to experiment although with caution until we find what is right for ourselves , Question others but apply that to what is or isn't working for ourselves . It might be a different brand or a slight difference in balloon inflation that will cause or stop a leak . But for me the goal is to at least appear normal when in public

Got my catheter changed, was like insertion. In like “flinn”, lots of urine came out which was nice to see. I asked why I leaked now and then. They both said that will happen on occasion. I get my botox next Tuesday. I will ask the Dr. about leakage.

The catheter feels very good. I almost don't want it to come out.

We will see what the Dr. says.

Not much else to report.

Good luck Czorro , When the catheter fits right it's almost like it isn't there . When it's wrong It's a mess .

Please read this with the sarcasm implied

It's a new fun to watch air bubbles being sucked back up the drain hose and into me, only to be followed by the “exotic” feeling of farting out of my penis.

It's the new experience of the day.

I wear a suprapubic because of pelvic injury. I used to enjoy wearing a foley before. I wear a leg bag most of the time, but sometimes I like to drain it into a diaper - I like waking up wet ….. Dan

I don't like to wake up wet and so I use an overnight bag. I take a number of diuretics and so I need a way to catch urine during the day and night.

As of today, I don't know that I have a catheter in me at all. Seems normal to me

Ordered and received 24fr catheters. I tried one. It was actually easier to insert and after several days more comfortable and hasn't leaked at all. It did look scary big but went in with no problems. No need to back up and feel my way past obstructions. Which i seem to have. It is almost like it isn't there. And when clipped to my underwear at night I can roll over in my sleep and nothing wakes me.

Only problem I have had so far is my own fault. I didn't read the package where it said no petroleum based lubricants and now it's starting to break down and needs to be changed again.

I have decided to let my caregiver change it instead of doing it myself because #1 she takes more care to do it than I do. She doesn't get frustrated and just shoves it in. Plus, and this is a big plus, she has been so gentle while firm at it. It allows me to relax and just let her do it.

Yeah I woke up in pain {back and legs} again. So here I am looking for something interesting to take my mind off the pain.

In my experience I have found that bigger is better for me. I tried smaller catheters is ok, but for me I had lots of leakage. When I had my botox injections I asked the nurse about leakage. She said all men have some leakage, which she said is normal, I said with the catheter I wear I get leakage now and then and she said that is normal.

I asked her to put a catheter in after the botox because I needed to see when I had clear urine so I could restart my warfrin. The catheter feels so good that after 4 weeks I will call and have a catheter change. The nurse who put the catheter in was so good. I asked her lots of questions and she said some men start to scream and holler at the first touch of their penis. I sat there naked from the waist down, she got a drape and said if you are not embarrased, I sure am not.

All I can say is that she is very good and she knows that this was not my first rodeo. She did her job and was great. Not once did I get arroused and she was wonderful.

I quite agree Czorro, i'm quite happy with my 24fr except with the small part around the tip. I need to lubricate the tip often to keep from tearing the skin open. By often I mean at least four times a day. Also i can't just plop down on a flat, firm chair without expressing some prostate fluid.

Now that the surprise of that has worn off it gets a little annoying and if i'm in private i need to clean that up before it dries and becomes a problem. I'm sure I will get used to it sooner or later, but I don't leak at all around it and to me that is the most important thing ..

I realize that the catheter makes me lazy. I don't need a toilet and this is great. I don't feel the catheter and sometimes I forget that I'm wearing a catheter.

My current catheter:

https://de.zity.biz/index.php?mx=gallery;ox=showalbum;ax=11587

I have it in due to urinary retention since may 14th and it will stay in until end of june.

Ich habe wegen einem akuten Harnverhalt schon mehrmals einen Dauerkatheter über längere Zeit getragen. Die kürzeste Zeit war 6 Tage, die längste Zeit mit einem Dauerkatheter waren sechs Wochen ununterbrochen. Ich hatte jeweils Silikon Dauerkatheter von ASID Bonz drin in der Größe ch 14 bis ch18. Und ich habe jeweils ein katheterventil von Stäubli oder uromed.

Nach Ein bis zwei Tagen Eingewöhnung habe ich den Dauerkatheter jeweils gar nicht mehr gespürt.

tägliches tägliches onanieren mit dem Dauerkatheter ist problemlos möglich und der Orgasmus ist jeweils sehr intensiv und lang andauernd.

Bei dieser sehr langen Tragedauer ist es wichtig, zweimal am Tag den Penis an der Katheter Eintrittsstelle gründlich mit Wasser zu waschen

I don't know I have a catheter in me at all. When I have to empty my bag, I know it and when I wash it off each day, usually 3 times a day, I know it. I like having the catheter because I don't have to worry about having going to the bathroom.

I'm to get my catheter changed tomorrow, It's supposed to be a 24fr. A month and a half ago a different Dr. completely Ignored me and ignored the recommendation's of the Doc's that fitted my first one and put in a 14fr that twisted up inside me and caused me to have to go into emergency room to resolve the problems. It didn't help that I'm also passing a few blood clots and too small of a catheter get's plugged and causes a LOT OF PAIN.

I have mostly gotten used to my 24fr now, my meatus isn't screaming at me about how very open it has been stretched anymore. I just have to be careful when I sit on a flat hard chair or seat. I almost can ignore the feeling that there might be a fist in my rear end

Yes I'm up late and can't sleep from the pain in my back and legs again. So yes I'm in pain again, won't take pain med's again and now I have to apologize for ranting.

Thank you for not getting pissed at me for yelling and screaming, although I'm the only one that can hear me really.

@nytwatch1 So yes I'm in pain again , won't take pain med's again , and now I have to apologize for ranting .

Please, no apologizing. So sorry to read the hell you are going through!

There is nothing like the pain of a catheter and not releasing urine and you feel like hell. Just insist that you want a FR-24 or FR-26 and be insistant about what you want.

Always remember that you are in charge of what you want to happen to your body!

That means the size of catheter and other things.

Sorry the pain is from lower back injury {broken back} that has been deteriorating over the years and has caused leg and bladder loss. I'm very anti drug, almost to excess so won't take painkillers, that means sleepless nights.

I watch a lot of youtube and Cruise by here once in a while, check out just a car guy web site e.t.c. All the while I can't get up from my couch. Thankfully with my cath I don't have to. Am now waiting for my caregiver to at least let me know she is alive and can take me to my appointment today, so far no word. That's life

Good news i just heard from my caregiver , she is on her way .

Well it's 1:23 A.M. and I can't sleep, Again. So I thought I would relate what went on yesterday.

New doc, never even saw him, was passed off to a nurse practitioner. She was embarrassing {for me } young lady. Was very questioning about my medical past. Probably a good thing. She spent maybe 10 mins putting in my new catheter, a new type silicone that I haven't seen before, easy in, Although it is marked 24fr it doesn't seem to be as large as my last one. A bit easer to live with I think. No irritating the meatus at all. Almost don't need any lube there at all.

Pain in my legs woke me tonight, no pain or anything with the catheter. Kind of odd to finally have one in that unless I move from the bed I don't know it's there. The other oddity was watching my 52 year old caregiver helping a 20 something nurse undress me so she could do what needed to be done. My caregiver has a firm and sure hand while the nurse was a bit shaky and nervous.

The new nurse, after she was done told me next time she would need to like to use at least an hour to get every thing done. An hour ? How can this take an hour to do ?

O.K. size does matter . This one , marked 24fr is differently not as large nor is the eyelets as large as the last one . This is probably unique to my own problem . The eyelets get plugged then there is a pain spasm followed by observing blood clots flowing down the tube and urine passing around the outside of the catheter and i have to change my underwear . It's not often , Maybe two or three times a week . But it means I have to be careful about going out in public .

Well I'm Back. My home care nurse just left after putting in my new catheter. Yes a 24fr at my new urologist last Wednesday, they put in a 24fr but his nurse didn't fill the balloon and it almost came all the way out. My home care nurse filled the Balloon to 30cc's. It seems I shed a lot of bladder lining, more than the doc has ever seen before, but not enough to be trouble. Enough to plug up anything smaller than 24fr. Any others out there put up with anything like this ????

I go in for a C.T. scan of my bladder next week. My second home care nurse comes to give me a bath Friday { yes I have two and even though they told me not too I still bath every day }

@nytwatch1 Hope nothing serious shows up in your upcoming CT exam. Good luck!

Thanks' Rigel Between all of these damn stroke's and contestant nurses coming into my small home and telling me what to do I'm just about to either give up or throw all of them out . But you should know I complain a lot . Give me a new car I'll complain it's not a truck and it stinks of new car smell . I do try to make it funny but as you know someone will take personal . Like I have two nurses who come here three time's a week to give me a bath . Three times a week they strip my bony ass and wash me telling me “get you're hands away from there!” Once a week a nurse , so large she can't come in though the door but side ways comes in to check my catheter . And she takes her time about that . And she keeps telling to make sure I don't play with it .

Yes, my urology nurse PA and her nurse, inserted a 24fr.30cc about 2 weeks ago

Hello Lynn , ? do you have the same problem? bladder lining debris clogging up the eyelets ? Mine still does but instead of a larger catheter {which would be logical } They prescribed oxybutynin chloride er tb24 that has the side affect of dementia . So now most times I don't know my own name or what day it is .