I was just in the hospital for a few days . Medication and multiple bag enemas weren’t working so. It took them 2 days to manual disempact me . Doctors are considering giving me a permanent ostomy to avoid future bowel problems or the laxative go around. I’m not a fan of the ostomy idea and changing diapers /bags and CGM and insulin sensors .
On an interesting note I am allergic to statins all my doctors on multiple occasions prescribed a cholesterol lowering drug and promptly had insurance deny it, so my endocrinologist gives it the old college try and gets it approved ( I would say I’m a good candidate 4 heart attacks, 1 cardiac arrest, 1 stroke multiple stents and roto router surgeries to open my coronary arteries.) so I am now shooting up a drug called Praluent every 14 days( statins cause Rhabdomyloisis , it dissolves your muscles into your bloodstream a black goo and you die “not exactly what a guy with 2 rare muscle disease wants”.
The worst part I’m not strong enough to give it because it’s a pen needle , so my aide has to give it to me .i can apply 8 pounds of force to release the plunger which is not enough for it to fire as its spring loaded ( pushing the button launches the needle into your body, gives the shot and then entirely retracts to be thrown out . In the past I tried 4 or 5 statins all ended with me in hospital with Rhabdo.
Let’s just say I had two wonderful women fisting me overnight they were as gentle as possible ,it is not a fun procedure to give or receive and is painful and exhausting .
Call me very grateful to those ladies for doing a job I couldn’t and emptying me .
We are all set for December for upper and lower scope 3 days to prep 1 day procedure 1 day to recover from anesthesia . Also have given up on Linzess 1 bottle in 7 months ain’t worth the effort so we are moving to Amtizia give that a try.