Today has been very rough. For those who arent familiar with my backstory, i have migraines, and occasionally get a rarer form of migraine called a hemiplegic migraine. essentially, it's a migraine that resembles a stroke. i haven't had one of those in over a year, until last night around 10:30 pm. my world shifted on me, the right side of my face went numb, and my right arm and leg quickly followed. hubby retrieved my crutches so i could ‘walk’ without falling, and i basically went to bed.
i woke up in the middle of the night, couldnt sleep, and got up. sorry to my friend who got a garbled message in the middle of the night… all of the physical symptoms have continued all day, which is unpleasant, but what worries, stresses, and frustrates me the most i the aphasia that comes with this. in other words, i start having real issues with being able to talk, to write/type, and sometimes will start losing words, period. my mind thinks rather clearly, but i cannot get out what i'm trying to say.
so my apologies to everyone who has tried to chat with me today. maybe tomorrow, language will be better under my grasp.
Thanks for all of the kind words and well wishes. I wanted to give an update.
As of this afternoon, I'd say I'm about 50% back. My face is mostly numb-free, and I'm not feeling numb in my right arm or leg. My ability to grip things with my right hand is weak, but better than yesterday. As far as my leg is concerned, it is weak, and the knee doesn't want to support well. Also, my drop foot is back, and that's affecting my gait, as well. I am still struggling a lot with the aphasia - the difficulty speaking. I can barely get words out, and when I do, I sound almost like someone who stutters or is Deaf. I am also having a lot of balance issues, using forearm crutches to walk and mostly keep me on my feet. I've had two falls, not serious aside from a couple of small bruises, but it's been hard for me to get back up off the floor.
I'm making progress, but this won't be back to normal for a few days, at least.
I've now had 4 of these suckers since the 4th. The aphasia is still bad, still having a lot of trouble walking and trying to grasp things securely with my right hand. Also as of last night, I am now sore and bruised from a bad fall. My husband is going to go after work to our storage to retrieve my roller walker. I know it's the right decision - heck, I suggested it - but it feels like a letdown, knowing I need to go to a higher level of mobility support.
In case anyone asks, yes, I have been talking with Doc about all of this as it has been happening. I go see my VA neurologist on the 31st, and will be discussing this with him as well. I need to come up with a better migraine protocol, since my current one obviously isn't working well now. As Doc has reminded me, I've been checked out and we know these are migraines, not strokes or TIAs. And even a small amount of progress is progress. It just doesn't always feel like it…
Migraine count: 5 hemiplegic migraines, plus a couple of “normal” migraines. Ten days of migraine pain in one form or another. Countless falls, both at home and out, one bad enough to leave my arms black and blue (and green and purple, lol) in places. Pulled out the walker and the crutches. But the best news? Today (Sunday the 14th), I am currently migraine-free! And I'm not needing any mobility assistance inside the house! Thanks for all of the well-wishes and concern. I am talking with Doc, and we are changing my migraine meds. Now I just have to wait for them to arrive by mail…