Subsequent to my last blog post, I received many phone calls, emails and PMs from kinksters the world over. Thank you one and all for your thoughts, support and advice.
Many said "tell them what they need to hear and deal with the consequences later. What're they going to do, take the kidney back?" While that is a plan (sort of), here's what would happen; I get the call in the middle of the night that there is a kidney that is a potential match, do I want it? I tell them of course I do and proceed to drive almost two hours from home to the medical center. Now, let's assume that I can't reach my caregiver; when I get to the medical center without my friend they will simply refuse to do the transplant. Because organs from a cadaver donor have a very limited shelf life, my foolishness may waste that organ for me, or for someone else that needs a transplant. It's a weighty thing knowing that someone had to die for me to be offered that organ, but to then waste it is not something I would want to deal with.
That being said, I spoke with a friend (you know who you are) who put the situation in terms that I can understand, "You gotta know when to hold 'em and when to fold 'em. It's time to fold, girl." I rolled that around in my head for a few minutes. Isn't it my goal to be transplanted before I have to go on dialysis? Yes. Is it likely that this transplant center has a short enough wait time that that's a possibility? Yes. So I called the social worker and said that I would consent to admission to a nursing facility if my medical care team determined that going home would not be a safe option for me.
It looks as though my case will be presented to the transplant committee at their next meeting, sometime within the next week to ten days. Keeping my fingers crossed.
ford 11 years ago
best of luck, you'll be in my thoughts and prayers
azdiane 11 years ago
It hadn't occurred to me that while they couldn't take the kidney back, they could refuse to put it in. I'm glad someone was wiser than I, and counseled you to "fold 'em" this time.
It's infuriating, even from my distance from the problem, that a bureaucracy can or would withhold life-saving treatment from a person with a life-threatening condition over something so seemingly petty. You have my prayers not only for your medical recovery, but for strength to survive the system.
skybear -N Florida 11 years ago
Prayers nightly and fingers crossed for you.
jim26415 11 years ago
Good luck ladydoc keep us posted
smithjanie 11 years ago
Good luck! I'll keep my fingers crossed for you.
n/a 11 years ago
Wishing all the best for you :) And sure am keeping fingers crossed here :)